Ellie Morris-Davies, a 16-year-old from Crewe in Cheshire, has made an extraordinary recovery after undergoing a series of surgeries to treat a cavernoma, a vascular malformation in the brain that led to a significant brain bleed. This medical condition, which can cause symptoms such as dizziness and slurring, is relatively rare, with approximately one in 600 people in the UK living with symptomless cavernomas, while about one in every 400,000 experiences symptomatic cases.

Ellie’s ordeal began in May last year when she started experiencing severe headaches and nausea, ultimately leading to her vomiting up to 16 times a day. Following an MRI scan, medical professionals discovered a bleed on her brain attributed to the cavernoma. Speaking to the Mirror, Ellie’s mother, Joanne, recounted her shock at the diagnosis, noting, “I’d never heard of them (cavernomas). When we went to A&E… they said they thought it had been there a while.”

The teenager was subsequently transferred to Alder Hey Children’s Hospital in Liverpool for a complex surgical procedure. Due to the high risk of further brain bleeds, surgeons performed a decompressive craniectomy, which involved the removal of a part of her skull to relieve pressure caused by the bleed. This piece of skull was temporarily stored in her stomach to keep it sterile before being reinserted.

Consultant paediatric neurosurgeon at Alder Hey, Benedetta Pettorini, explained the rarity of such operations in children, stating, “But in some selected cases that’s the only way to save their lives.” In the past four years, Alder Hey medics have conducted fewer than 20 neurosurgeries for cavernomas due to their complexity.

Despite the initial surgery, Ellie’s condition deteriorated, and she was admitted to intensive care. Ms Pettorini attributed the need for additional surgeries to increased swelling caused by the cavernoma. Following these procedures, Ellie faced significant challenges, including the inability to move her left side or speak, and she resorted to communicating with gestures.

Joanne mentioned the rigorous rehabilitation process, stating, “She’s had physio every day. But after seven weeks of not walking she had a bit of movement in her leg. Her fingers have been the last to get going, but she’s relearned to walk, talk and swallow.” Recently, Ellie returned to the stage to join her dance class in a performance, which her mother described as an emotional milestone.

Reflecting on her journey, Ellie expressed hope and determination, saying, “I thought I would never go home. There are still things I can’t do, but I’ll get there. I can’t wait to be back on stage, singing and dancing.”

Source: Noah Wire Services